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The Myelin Project

The Myelin Project
The Myelin Project is a multinational medical research non-profit organization aimed at funding research to find a cure for demyelinating diseases. Founded in 1989 by Augusto and Michaela Odone for their son, Lorenzo, who suffered from X-linked adrenoleukodystrophy (X-ALD), the most common of the leukodystrophies.


Members of Congress honored Mr. Augusto Odone,whose perseverance and devotion to his son, Lorenzo, is truly inspirational. The luncheon, that took place September 12, 2012 in the Capitol educated those in attendance about his poignant journey and the important work of The Myelin Project in researching treatments and potential cures for and raising awareness of adrenoleukodystrophy (ALD).

The event celebrated the start of the campaigns to award Mr. Odone with a commemorative Senate resolution and the Presidential Medal of Freedom for his contributions to the treatment of  ALD and his founding of The Myelin Project.
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Lorenzo's Oil is a 1992 drama film directed by George Miller. It is based on the true story of Augusto and Michaela Odone, two parents in a relentless search for a cure for their son Lorenzo's adrenoleukodystrophy (ALD). The film was nominated for two Academy Awards.
The Myelin Project is a multinational medical research non-profit organization aimed at funding research to find a cure for demyelinating diseases. Founded in 1989 by Augusto and Michaela Odone for their son, Lorenzo, who suffered from X-linked adrenoleukodystrophy (X-ALD), the most common of the leukodystrophies.
Wednesday, September 12, 2012
CELEBRATING HIS HISTORIC BREAKTHROUGH IN ALD THERAPIES
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